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January 31, 2007

Deaf People Treated as Ghosts

Angry Deaf Man Deaf shares an experience about shopping with a friend when the salesperson tends to look at the friend instead of him. I haven’t had the opportunity to travel much overseas and his comment about not having this problem outside of the U.S. intrigued me.

It happened to Angry Deaf Man again. This time with a parking attendant.

I get scared at the thought of traveling to a foreign country because lipreading a foreign language tends to be harder. In one company, I worked with people from around the world. I looked forward to working with them and getting to know them. But then reality set in. I couldn’t understand them very well. So whenever I communicated with them, it had to be brief and about business.

I can relate to Angry Deaf Man’s experiences. I can recall many group events, team bus rides and other situations where I felt invisible. Sometimes I push and get myself involved with the discussion or group. Other times, I back away. It all depends on who I am with and how well I understand him or her.

That’s what I love about blogging. None of the barriers get in the way and I can enjoy intelligent discussions with others.

January 29, 2007

Radio for the Deaf

While RFW’s post about Radio for the Deaf isn’t to be taken seriously, it reminded me to discuss the topic. I’ve never pushed for radio captioning. Sure, it’d be cool to follow along with the songs and practice my hearing — but really — most of the time I am the driver not the passenger. Not a good idea to read and drive.

How often do people listen to the radio at home with MP3 players? One thing I’d like to see is a greater use of technology that gives you the title of the song and the group/singer. My car is too old to have this, but Paul’s car radio displays the song title and artist if the song contains the ID3 Tag. Radio data system isn’t it, but it has relevant information.

It’d be nice to know the title of a song I find myself enjoying. I rarely discover new songs since high school as I don’t follow music by watching VH-1 or MTV because I don’t have the luxury of repeatedly listening to a song until I learn the lyrics. I have to have the lyrics in front of me while playing the song — that means no multitasking.

Continue reading "Radio for the Deaf" »

January 23, 2007

Technology Lags for the Deaf

With Baby Boomers hitting middle age, the number of deaf people is climbing. Millions Of Us Are Going Deaf And Our Computer Won’t Help Us rants about the things many deaf people discovered long before now. Still, it’s an insightful read and helps spread the word about the challenges deaf and HoH people face.

January 12, 2007

More on Not Deaf Enough

Social Work/Social Action points to Deafness and the Riddle of Identity, which discusses Jane K. Fernandes and the “not deaf enough” issue. It isn’t fair to use the fact that Fernandes wasn’t a native signer against her.

Not I’m not going to defend Fernandes, but want to say don’t hold this sort of thing against a person. Remember, when we’re children, our parents and guardians make our communications decisions for us. So some great ASLers may not have learned ASL until later in life.

Granted, Fernades wasn’t fluent in “real” ASL, so I understand that. The point of the message is to not judge someone because ASL wasn’t his or her first language.

January 9, 2007

Matlin on My Name Is Earl

I admire Marlee Matlin and the show’s writers for its episode where Matlin played Joyce’s lawyer, Ruby Whitlow. Actually, she was in several episodes, but I’m referring to the one from November 30, “Born a Gamblin’ Man.”

I admire the writers because they scripted a funny story that addressed the sort of thing we don’t encounter in real life, but could think about it. For example, Doug — Ruby’ interpreter — covers his mouth with a notebook and tells Joy that sometimes he gets annoyed with interpreting for Ruby like when she flirts with a guy. Hilarious.

Joy, being the troublemaker (this is a family friendly site, y’all) she is, beat up the interpreter. Another time, Ruby speaks to Joy with her own voice. Joy responds with a big laugh and says, “That deaf accent of yours gets me every time.’’ Making fun of deaf people’s voices isn’t new as I’ve dealt with it from kids — but adults talking about it on a TV show is something else. Earl’s writers did a great job making it genuinely funny not “feel sorry” or “laughing at you” funny. Shows like Saturday Night Live do this all the time.

A TV Guide reader wrote to Matt Roush about one of the earlier shows in which Matlin appeared about Joy’s laughing at Matlin’s voice. I liked what Roush said: “Earl is a show that blends crude and sweet humor rather fearlessly, with little regard for political correctness or even tastefulness. If Joy’s reaction to the lawyer’s deafness was offensive, it was meant to be. But it was so extreme (as is Joy’s way) that it was also hugely funny.”

Hey, I rather kids laugh at my accent than point and stare.

January 4, 2007

The Family's First Computer

I’ve been reading Steve Wozniak’s autiobiography, iWoz, learning about the birth of Apple Computer and its evolution to Apple I and Apple II. Made me think about how eager I was to get home from camp in 1980 because I knew we had gotten a new computer, an Apple ][+. Reading iWoz, I realized my dad got into the personal computer thing early. All these years later, he still isn’t a whiz with computers and relies on his children and our spouses to fix his computer, hardware and network.

So I asked Mom why he bought a computer as early as he did. First, she thought I asked why an Apple not the TRS-80. She wrote, “At that time, it was mostly Apple or Radio Shack’s TRS-80 for at-home personal computers. Apple was the most popular and supposed to be user-friendly (which we certainly needed, since we knew nothing and you were young.) We looked, drove around to get the best deal (they were so expensive) and finally bought that one in Arlington, hoping it would work for wht we needed (wanted.).”

“Why did Dad get a computer so early in the game?”

Mom said, “He wanted you to be computer savvy - he knew it was the big thing coming and figured we’d use it, but mostly you’d get into the computer age and it would be a great communication tool for you. He was right!”

Boy, was he right. Actually, I didn’t use it for communication until about five or six years later when we got a 300 baud modem. Even when we installed the modem, I didn’t use it much right away. My generation didn’t grow up with computers — a handful did. We might’ve had computer labs in school that we could use once a week or so, but not something generally found in the home.

Too bad we didn’t invest in Apple stock!

January 3, 2007

Theater without Studying

Call me strange, but I’ve loved musicals since I was a kid. I would pretend I was a character from a show and sing without fear of how bad I sounded — of course, I had no real audience. My parents took me to many shows at Casa Manana, a theater in my hometown of Fort Worth. Casa has a colorful history with Billy Rose who brought famed stripper Sally Rand to perform.

Casa has a round stage — which made it difficult to have a bad seat in the house. Sure, the audience faced the stars’ backs at times, but the direction was well done so it was hardly noticed. I learned many of the songs by heart and became familiar with the storylines, so I could fully enjoy each show.

I even spent two summers working at Casa changing the scenery. I still have my shiny black jacket with Casa’s famous domed building on the back of it and my name on front. I had the pleasure of working with Ruta Lee, Peter Palmer, and Jason Byce in Hello, Dolly! and Paint Your Wagon.

I had the pleasure of seeing many wonderful shows at The Kennedy Center in Washington. We had season tickets there a couple of times. We’ve also seen shows at Arena Stage (has a round stage, but not the one we saw), National Theater, and the famed Ford’s Theater where Lincoln was shot.

What does all this have to do with studying? I got carried away with memories. Anyway, we’ve had tickets to see Wicked at Dallas Music Hall for over year for April 2007. I bought the book and the CD so I could familiarize myself with the show and completely enjoy it.

When I went to the theater’s web site to try to buy a third ticket for my daughter, the OC (open captions) caught my attention. Can you imagine how excited I was when I read that the theater gives laptops that have the script? I can’t wait to try it out. It’ll be interesting to see how well I can read the screen and watch the action on the stage. One suggestion: Why not use tablets instead? They’re lighter and less bulky.

Dallas Summer Musicals has a great line up this year. We were tempted to get season tickets, but it’s too difficult for us to try to make a show every two weeks especially with our kids’ schedules.

December 19, 2006

Air Travel for the Deaf

Austin news channel KXAN reports on new technology in a San Antonio that will make it easier for the deaf when they’re at the airport. Deaf Link is an airport station that lets a deaf passenger connect with a Deaf Link interpreter through the Internet and communicate ith airport or security personnel.

But this is limiting because it’s only for those who know ASL. I doubt it would be easy to lipread the video just like it’s difficult to lipread people on TV. I know, I should be grateful that the airport is taking steps to help and I am.

Cheryl Heppner of NVRC also wrote about an action alert on accessible air travel last March. Here are the details from her email:

Continue reading "Air Travel for the Deaf" »

December 11, 2006

Help for the Eyes... Finally

I whined and moaned in this entry about the problem with my eyes aching and feeling pressure. My regular doctor told me to see the ophthalmologist rather than my optometrist (Talked to him, too).

She said all my symptoms pointed to dry eye syndrome. First thing to try was adding tears (eye drops) four times a day and then an eye gel at night. After two weeks of that, I didn’t feel better. The office did a test on my eyes at that appointment and the results stated I had severely dry eyes.

The doctor put in plugs (didn’t bother me at all) and I will continue my routine (if she hadn’t put in plugs, I would’ve had to put tears in EIGHT times a day). All About Vision has a great entry about dry eyes complete with animation showing how plugs get inserted. The entry says that Dallas/Fort Worth is one of the top 10 cities named as a dry eye hot spot.

After reading up and talking to the doctor — It’s no surprise that I had serious dry eye problems as I had LASIK in 1999, took meds that can lead to dry eyes, and being a woman (hormones can cause dry eyes). But my eyes never felt dry and she said that can happen — maybe I adjusted.

Anyway, there you have it. If you hear someone is having problems and can’t find answers — here’s one possibility to check into. While this has nothing to do with deafness, I had people asking me if it could be related. So it isn’t related in my case.

Two more pages with good info. One from Mayo Clinic and the other from The Eye Digest.

December 7, 2006

Employers and Deaf Employees

How to Calm a Nervous Employer provides suggestions on how people with hearing loss deal with interviews and telephone calls. I especially appreciate the “Left Out” section as that’s been a life-long challenge.

I have a contact number for my business, but I also link to an entry on how the relay service works. I’ve tried to keep the contact process and relay information simple. Ever since I first entered the workforce, I’ve constantly searched for ways to explain the relay process in as few words as possible. I hope this process works in helping current and potential clients feel comfortable about working with me and contacting me.

November 30, 2006

How Relay Services Work

Various relay service providers exist, but they all work similarly. A person who is deaf, has speech challenges, or has visual impairments contacts a relay service through a TTY, special phone, web site, or instant messenger where an operator acts as a go-between.

A person calls the relay using a preferred method (TTY, online, etc.). The operator answers and asks for the phone number. The person provides the phone number and any other relevant information, if needed.

The operator calls the number and explains the relay service to the person called. The person called answers normally and says, “Go ahead,” when finished responding.

The operator types the response to the caller who types, speaks, or signs (depending on the type of service used) a reply in which the operator repeats to the person called. The conversation continues using this process until the end.

The call doesn’t cost anything (except for long distance and cell phone charges) as the funding comes from other sources. Long distance calls made online typically don’t involve charges.

Contacting Meryl

I have a phone number that reaches me through AIM (AOL instant messenger). When the caller calls me, it’s almost like making a regular call except with delays between caller and person called speaking. The relay service requires patience, but I want to be available for clients and prospects.

Some people find the process tedious and prefer to use email, instant messaging, or another means to communicate with the caller. I try to make the communications process as easy as possible for clients and potential clients. Unfortunately, sometimes I can’t reach people because they hang up on the service thinking it’s a telemarketer.

Working with Managers and Employers

How to Calm a Nervous Employeer offers advice on how to prepare for a job interview or prepare a potential client by explaining technology and ASL. As a result, I plan to add information about using the relay service on my About page.

More on this in a past entry.

November 21, 2006

Deaf Job Seeker

I read Joyce Lain Kennedy’s Career Advice column and in last Sunday’s column, she provides advice to a deaf job seeker [may require free registration] who is struggling to find a job that doesn’t require telephone work. The writer also says that employers are reluctant to hire someone with a disability. I’m disappointed to read that as I rarely ran into this sort of problem since graduating college. Furthermore, I’m a full-time freelancer so I’m constantly “seeking new employers” in the form of clients. Perhaps, I’ve been lucky.

The only time I may have run into an employer who wasn’t comfortable with a deaf person was in high school — the retailer was the only one that didn’t accept me for the job. I even had the opportunity to work in a department store’s gift wrap shop in spite of the requirement to answer the phone. I turned it down because they believed I could handle the phone. It wasn’t a loss as I don’t have a talent for gift wrapping.

Anyway, Kennedy use professional athletes as an analogy. At the end of their professional sports career, they rely on their network of friends and family to open doors to a second career. Troy Aikman and Emmitt “Twinkletoes” Smith have done well in their post-football years. Kennedy points to DeafProfessional.net, a one-year-old web site covering deaf professional issues and profiles successful stories.

Sadly, Kennedy quotes a Society for Human Resource Management (SHRM)statistic saying that “only 55.8 percent of the disable community has a job.” SHRM is working with the Department of Labor’s Office of Disability Employment Policy to provide resources to employers on hiring people with disabilities.

November 16, 2006

Relay through MSN Messenger

My IP Relay is available on MSN Messenger.

To use it, add myiprelay@verizonbusiness.com to your MSN Messenger Contact List.

To make a call:

  • Just click on contact name, My IP Relay
  • Enter the phone number you want to reach and follow the directions
  • My IP Relay connects your call

Learn more at http://www.ip-relay.com/myiprelay.html. This is the same service that offers AIM relay (contact name: myiprelay). I use it most of the time because it’s faster than web-based relay services and it blends right in with my online chat application. Furthermore, I get my own phone number that goes through the AIM service.

November 13, 2006

Play by Play of JKF Protest

When I read stories from the 1990s, I’m amazed how different they could’ve turned out had cell phones been more common then. Paul and I had numeric pagers. We came up with different codes to communicate with each other. Now we both have Sidekicks and can AIM to text message each other.

Forbes explores how Gallaudet protesters kept each other informed with technology. Paul and I use our ‘kicks to stay updated on game scores, shopping questions, and children whereabouts. Is it any wonder why I love technology and gadgets?

November 8, 2006

Captioning Ads

AllDeaf.com points to a story about deaf people who want to see closed captioned ads. We may fast forward through commercials when watching TiVO or a taped program, but there are times when we’d like to know what is said on the commercial.

Super Bowl time, for one. Hey, with all the hoopla about commercials during the big football game of the year, we want to be included. People talk about hilarious commercials. We like to laugh, so please caption it so we can laugh with everyone else.

The story talks about political ads. Deaf people can vote. At least, those 18 and older. I’ve voted in every minor and major election since turning 18. Political campaigns aren’t required to be captioned — only for presidential candidates who receive federal funding.

Considering not everyone turns out for voting, don’t candidates want to grab as much of the deaf vote as possible? Not that I would be influenced by the candidate who captions vs. not captions, but it can make a difference in an election where you have one Republican, one Democrat and two Independent candidates. That would be the Texas race for governor.

Super Bowl advertisers, are you listening? If you pay big bucks to run your commercial during the big game — what’s a measly few bucks for captions?

October 31, 2006

Deaf Struggles

Lots of great articles popping up regarding Gallaudet and the Deaf Culture. Alicia sent a link to a very powerful article [scanned version] written by the mother who has a deaf daughter. The article highlights the big picture for the protests against the selection of Jane K. Fernandez presidential appointment. The shocker? The article [html version] is 15 years old!

This New York Times article published in Arizona Central is also worth a read as it also explores the Deaf perspective.

Here are letters from Dr. Roz Rosen and others. Another honest and insightful commentary from Rick D. Taylor a.k.a. Ridor, David W. Boles, and The GU Private Investigator.

October 30, 2006

Insight into the Deaf World

This superb article from the Houston Chronicle by Clarence Page of Washington, D.C., and Pulitzer Prize-winning syndicated columnist. It looks at mainstreaming, Galludet and its presidential challenges, the culture, and cochlear implants.

Everyone should read the last four paragraphs.

When you divide the world between “us” and “them,” even in reaction to prejudices, you run the risk of developing dangerous prejudices of your own.

October 25, 2006

Online Video Captions

For many of us, the Internet erased communication barriers until videos started gaining popularity with sites like YouTube and TV networks making episodes of shows available as downloads. We can watch the TV shows on TV with captions, but the downloaded videos are silent — without captions. The Wall Street Journal took notice with its article: Deaf Web Users Fear Being Left Behind As TV Shows Stream Onto the Internet.

Even with the Journal’s article, it will take a lot more notice to make a difference — but it shouldn’t be as slow a process as it was for TV captions. I hope.

October 16, 2006

Data Plan for PDAs

I want to switch to the Palm Treo when my current data plan contract ends in December, so I’ve been researching prices and options. I went to Verizon Wireless and couldn’t find a data only plan. The rates for a calling plan with unlimited data were too high.

I emailed Verizon about a data only plan and the company said it can’t offer specific plans. I understand — but according to PC World and Palm’s press release, it had a data plan for $45. Either it went away or never existed. That would work for me.

Cingular and T-Mobile don’t carry the latest Treo. Sprint’s service is bad where I live. Garth Wireless targets people who are deaf, and there I find a Verizon data only plan that costs $20 more than T-Mobile’s data plan with a Sidekick. Data plans with Blackberrys are also cheaper.

Seems the message is for me to stop using PalmOS. I should switch to something else, but I can’t help but prefer PalmOS-based devices.

October 9, 2006

Taking Notes

stu.dicio.us is a great idea and would’ve helped me a lot in college… but what are the chances fellow students who take the same classes would use this service? I entered my university and there were only NINE notes from classes I never took. I also entered the university I attended as a freshman and that had one note. It’s going to take time to build this up besides with students changing (graduating plus entering freshman), it won’t be easy to inform the new students about the service.

September 20, 2006

Deaf Comedy and Jokes

If You Could Hear What I SeeWell, as a lipreader-instead-of-sign-language-user, I can’t catch these videos from DeafJoke.tv. But I get the third comic strip and I love it. Though I may not use an interpreter, I’ve had plenty of situations when I had delayed reaction or laughter because someone had to tell me what happened. Funny snakes, too.

I hate it when I have to ask people sitting around me… “What’s so funny?” “What did I miss?” “What did she say?” I’m sure it comes across like I’m not the brightest bulb in the box.

Ken “Prof. Glick” Glickman wrote a few humor books on DEAFinitions — I have a couple of them. He sends DEAFinitions on a weekly basis. I also remember enjoying Kathy Buckley’s comedy routine on TV. She was hilarious. I’d like to share one of her funniest lines… but I can’t quite recall the set up and it’d ruin the joke.

September 12, 2006

Experience the Awareness

Last Friday, my kid’s elementary school held a program called “Experience the Awareness.” The point of the program is to have the kids learn about the struggle behind the different disabilities and learning differences. Kids rotate through 10 stations, spending about five minutes (too short) at each station.

We covered muscular dystrophy, missing limb, injured limb, autism, cerebral palsy, dyslexia, asthma/speech, blindness, hearing loss, and wheelchair. The deaf station required the kids to put cotton balls in their ears, put headphones over them and listen to the music. Then they would take one cotton ball out to see what it’s like to only catch some of what they hear.

Continue reading "Experience the Awareness" »

September 5, 2006

Dealing with Phone Reps and Recordings

While working for a company, employees received a letter from HR telling us we needed to call the voice automated system to confirm our accounts. It had to be “the employee” who does it. I asked the manager what I should do about it and she said to have Paul call.

I didn’t trust this process because I’ve gotten phone calls from my credit card company and other businesses that must talk to me. One time Paul and I were frustrated with a caller. I told the caller that I was Meryl and that she had permission to talk to Paul. It took a few repetitions to get through to her.

I appreciate that companies try to watch out for their customers in times of identity theft — but where can we find a happy middle between the company ensuring safety and getting what it needs while keeping the customer from getting frustrated with jumping hoops.

Continue reading "Dealing with Phone Reps and Recordings" »

August 31, 2006

Connecting Online

Did I tell you how much I appreciate the Internet? It’s the one place I rarely run into communication barriers. The only time that happens is when a site has audio or a video without captions (and it isn’t easy to tell what’s going on just by watching it). I posted entries on this over in meryl’s notes as I think online communication goes beyond making it easier on a deaf person like me to connect.

August 23, 2006

Misreading Lips: The Mahjongg Story

I play mahjongg once a week and love it. I, however, can’t imagine playing as fast as the regulars do especially since I have to look at every tile thrown. My group contains mostly beginners and we’re getting faster — but still a long way from the continuous clickety clickety clack game.

Anyway, we were on break after setting up the next game. My friend was studying her tiles while talking to herself. “Don’t cuss!” I said. She jumped out of her seat and glanced at me with a confused look on her face.

She didn’t cuss. She said something entirely different. [Blush]

Now she tells everyone the story and we have a good laugh. I forgot what she really said. Maybe it’s a good thing because obviously my lipreading skills were off.

August 21, 2006

Hearing Loss and Hearing Help

Here’s an excellent guide from The Hearing Journal. It discusses the price of not addressing the hearing loss and where to get help. There article also contains a long list of resources, which I’ve added here as a backup.

Organizations:

Companies:

August 18, 2006

Paying the Price for Not Being Yourself

Stephen Hopson, a talented person who is a pilot and former stock broker, shares an embarrassing experience that could easily happen to anyone who is deaf. I do what he did — answer “yes” or “no” when I’m not sure what someone said and I’ve already asked him to repeat. You just don’t want to be a bother by repeatedly asking, “What?”

A minor incident happened a few months ago. It worked to my advantage, but it also made me feel guilty. At the mall, I stopped to get a soda on my way out. I ordered and had money in hand. The guy at the counter asked a question. After two or three times of “What?” I finally said, “Yes.”

The cost of the drink was less than what I usually pay. Confused, I took my drink and left. Moments later I figured out what he asked. “Are you a mall employee?” Oy! I accidentally lied and felt rotten about it. I tried to make up for it by giving a tip next time.

August 15, 2006

Public Speaking

My sister told me about a conference scheduled for November here in Dallas and encouraged me to submit a proposal. I’m not afraid of public speaking, but rather others understanding me and hearing their questions.

A few years ago, I did a panel at sxsw and it went OK. I was the moderator, so I didn’t have to worry too much about interacting with the audience and panel members. But I think I’ll pass on any future panels — unless it’s people I’ve met in person and understand.

For this presentation, I plan to bring index cards so the audience can write questions. I haven’t decided whether I’m going to collect the questions or walk around and read them while letting the person read the question out loud. I did this once in college when I did a lesson plan with children (we all did short lesson plans). Barely can remember how it turned out, but it must’ve been fine as I would remember it if I struggled or ran into problems.

The hardest part isn’t speaking and listening, but creating a creative presentation instead of falling into the PowerPoint Trap. I plan to dig into Metaphorically Selling for some ideas.

August 8, 2006

The Front Row Dork

School, meetings, conferences, speakers. I felt like a dork having to sit in the front row in school by choice. I was grateful to teachers who did assigned seating saving me from “making the decision” to sit in the front.

Dorkier than sitting in the front row in a class: sitting near the front when coworkers and I went to listen to a speaker. I’d be up front alone while my team sat in the middle or back row. Occasionally, a team or a few members sat with me in the front row without a thought and I appreciated that.

One time a manager motioned for me to come sit in the next chair. I did something stupid. I rolled my eyes in frustration. Not at the manager, but as a reflection on the whole “front row” thing I’ve done all my life. More like “Here we go again… to the front row!” The manager naturally and understandably thought I was being rude.

I don’t automatically go for the front row as I’ve learned over the years, the front row isn’t always the best place to sit especially when dealing with roamers, neck pain, or angles. The roamer is a speaker who likes to walk around. In this case, I scoot back to the middle row.

The neck pain comes from looking straight up when the speaker is on a stage or platform. The angle is when the speaker is on the left or right side and I have to turn my head to one side for the entire time eventually cramping. Of course, everyone knew when I wasn’t paying attention when I turned my head the other way for relief. Shame on me! My eyes aren’t on the speaker.

Generally, I try to tell the speaker that I’m a lip-reader and then ask about the best place to sit. But sometimes the situation doesn’t allow me to do that like when I went to 6th Grade Parents’ Night. We went to the auditorium and I sat between the front and the middle of the auditorium. Well, we got a deep roamer!

Lucky for me, a friend of mine spoke up in front of everyone, pointed in my direction, and said, “She can’t see you” and the rest was a blur as I imediately started blushing like the child who has been caught red-handed. I knew she meant well, but it was embarrassing when someone else speaks up like a parent does for a child.

My friend also tells other people and kids to look at me when they talk. I haven’t even done that with my toddler. When he talks to me, I simply remind him I can’t hear with his hand over his mouth or to speak up (when he’s too afraid to ask for something). When I put him to bed last night, I left the bathroom light on and explained to him that I can’t hear him with the light off. “My ears don’t work like yours. So I use my eyes to listen.” Don’t know how much he grasped.

My 12-year-old understands. My 7-year-old knows I can’t hear without my implant and that he should look at me when he talks. But he forgets like when his friend or friend’s parent calls and he tells me to talk on the phone. Besides, looking at someone when you speak is a good habit, isn’t it? When someone doesn’t look at me (and I can still see their lips), I feel like they’re not talking to me.

I just work with my kids based on their age and situation. Mainly, I tell them to look at me when they talk. It’s rarely an issue.

July 27, 2006

Making Small Talk at Events

I’m not shy, but I am afraid — not for the same reason listed in the article: “Most of us are afraid of rejection.” Rather, I’m afraid that I won’t understand the other person. I’ve reported this before that lipreaders on average only catch one-third of what’s said. Read every third word and you’ll see how it can affect understanding the article. I tried to find the scientific article that reported this — but no such luck — although a doctor reports this fact, but he doesn’t say where the information comes from.

University of Wisconsin has a guide for working with students with various disabilities. It states, “Only about one third of all English words can be lip-read. Many of those words that can be lip-read are identical to other words. Students who lip-read pick up contextual clues to fill out their understanding of what is being said.” That’s true. For example, “mom, mop, pop” all look alike when you look at the mouth movements. My implant helps me distinguish the p and m.

I’ve attended conferences and networking meetings. I don’t believe I’ve picked up any business through these means. That’s why I rely on my web site, blog, and newsletters for marketing.

July 21, 2006

AOL Closed Captions for Online Video

Fabulous news! About time a company did something. America Online announces close captions for online video.

AOL today announced it is now testing closed captions for streaming news content from CNN that will enhance the online media experience for people who are deaf or hard of hearing. Captioned CNN video content will be available throughout the AOL network, including the AOL service, the free AOL.com Web portal (http://www.aol.com) and the AOL Video portal (http://www.aol.com/video).

More information on AOL’s closed captioning initiative and links to closed captioned videos here. This resource only lists samplers from what I can see. I found captioned videos by going to http://www.aol.com/video and entering “captioned” or “captions” into the search box. When you first use it, be sure to click Preferences and tick the captions box.

OK, there’s a flaw somewhere. I tried watching Shania Twain’s “Don’t” and John Mellencamp’s “Walk Tall” and neither had captions. What’s up with that? I tried it in Firefox and Internet Explorer. I can play the videos, but see no words.

July 18, 2006

Dark Room and the Deaf Photographer

I received an email from talented photographer Peter Bryenton, and asked if I could post it here because it gave me insight in a major problem that a deaf photographer has to deal with. They came up with a clever solution… but it isn’t perfect. He kindly agreed and provided an expanded note.

There’s a serendipitous feel about the way I sometimes stumble across links between blogs long after I’ve forgotten how I arrived at them.

Meryl is an experienced blogger, worth reading, with whom I have exchanged a few brief words about teaching special needs children. There is often an immediate assumption among many people that a hearing impairment, or an unusual speech pattern, signifies stupidity. More often than not, nothing could be further from the truth. Is Stephen Hawkins any more daft than the rest of us, just because his body does not obey his mind?

I remembered how, when I was at Art College in the early seventies, I befriended a fellow photographer who was profoundly deaf. Andrew was exasperated by other students, who repeatedly burst into his darkroom, ruining his work. They had dutifully followed the unwritten professional code of conduct and knocked on the sliding door first. On hearing no reply, because, of course, their knocking had not been heard, they went in. Surprise was usually the least of the ensuing states.

There was a clever system of red and green lamps above the doors. Put our trust in technology, OK? Well, frail humans leave red warning lamps switched on, even after they have left a space, forgetting to switch them back to green. Oh, and let’s not forget about those who lived with red-green colour blindness?

Life isn’t ever simple, is it?

July 14, 2006

Illness and Hearing

I didn’t wear my implant for almost two days because I was sick. When I put it back on — whoa, it was uncomfortable. Took a little time, but got used to it. It takes time to get used to wearing braces and eye contacts — the same applies to hearing aids and cochlear implants. But why did I have to start over every time I got a new hearing aid? It was understandable when I got the cochlear implant.

I had a lot of ear infections when I was a kid (nothing to do with my hearing loss as far as I know) and I couldn’t wear my hearing aids when that happened. It got so bad that I was no longer “used” to wearing two hearing aids at the same time — plus, we had to send it in for repairs.

And from then on, I wore both hearing aids, but I would switch between ears depending on which sounded better. I never told my parents until years later. I believe it was high school when I got a new set of hearing aids and I got used to wearing both at the same time again.

Now with a cochlear implant, I am back to one. I don’t know if I want to get a cochlear implant for my other ear. I fear getting sick again from the surgery. That lasted too long and I don’t have time to be sick like that. Heck, I didn’t have time to be sick for the past week and now I’m behind.

July 12, 2006

Not Deaf or Hearing Enough

I’ve heard this argument in different forms. She’s too Jewish. She’s not Jewish enough. She’s too much of a democrat. She’s not Republican enough. Here the person isn’t deaf or hearing enough. I don’t 100% belong in either world, although I have a higher percentage of belong in the hearing world than the deaf world.

Just have to make do with what I’ve got and accept things as they are.

July 7, 2006

Communicating with the Deaf

A reader provides tips for communicating with someone who is deaf and she says that deafness is not a visible disability, which can be nice as well as difficult. The good: You’re not instantly judged when you meet strangers unlike other disabilities. My daughter has a friend who has an arm that stops at the elbow and kids teased her at their sleep-away camp.

The bad side. When I was a teen, I went shopping with my mom in a mall clothing store. I was trying on clothes and my mom had gone to look for something elsewhere in the store. The sales person was talking to me on the other side of the closed door. I either had my hearing aids off (to avoid squealing) or I figured someone was talking to someone else.

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July 3, 2006

Deaf vs. Hearing Loss vs. Hearing Impaired vs. Hard of Hearing

Reading this Letter to the Editor in regard to this story triggered my thinking about the terms related to deafness. But first, a comment on the story. While the letter writer is right that the statement could’ve been easily omitted, Dave Crosby was being honest about his feelings about his own deafness. It would be unbearable for him to become deaf. I try to show that there are all kinds of deafness and how we feel about it.

The debate on which terms to use: deaf, hearing loss, and so on, has been around as long as deafness. Political correctness aside (these terms should all be fine anyway), each one conveys different connotations. The one that may not be politically correct is “hearing impaired” because some see “impaired” as implying a disability. When I say “hearing impaired,” it’s out of laziness because “hard of hearing” takes more effort to say. Same amount of syllables, but still I find it easier to say “hearing impaired.”

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June 29, 2006

Pay Phones Need to Stick Around

Pay phones were disappearing and I was concerned about that for a while. As you know, it’s pointless for me to pay for a cell phone that I would only use in the case of an emergency. That’s a lot of bucks to pay every month even with a basic plan. A pay phone only costs a few cents and it’s all I need for emergencies. I’ve had very few emergencies in the last 20 years… thankfully.

We still need pay phones. Hey, cell phone batteries die. Cell phones stop working. Cell phones lose signals. Cell phones don’t appear in every kid’s backpack. Heck, many kids don’t have cell phones. Let’s hope phone companies keep pay phones even though they know cell phones bring in more money. The challenge is to find the best places to park a pay phone as there aren’t many and they need to be located where people would need them.

Inspiration for this post comes from Toby. Thanks. I agree that posting advertising on pay phones isn’t the best thing to do when targeting execs and business owners.

June 19, 2006

Embarrassing Moment in School

I often turned off my hearing aids while in the middle of something that caused them to squeal as I had them turned all the way up. It wasn’t until I got digital hearing aids that I could stop topping out on the volume.

In 7th grade science, we did a lab where we looked for some living thing in a microscope. Bending over to look for the thingy, my hearing aids yelped. Off they went. My table struggled to find this stubborn thing. I couldn’t contain my excitement when I spotted it, “I found it!”

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June 14, 2006

Elementary Signing and Lipreading

I was blessed that I didn’t stand out too much during my public school years. Kids who made fun of me did it in a joking way that was no different than making fun of my religion. In fact, they probably made fun of my religion more than my deafness. They often said, “Jesus loves you.”

I responded, “It’s so nice to be loved.”

The boys love to say, “I want a fig newton” or “Olive oil” because when you read lips, they come across as something else. A couple of them would say, “Read my lips,” and then proceed to do the Bronx cheer. Cute, huh?

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June 9, 2006

Understanding the Deaf

This insightful story from a Nigerian publication addresses the two different broad types of deafness: prelingual (deaf before speaking) and postlingual (deaf after speaking). Unfortunately, there’s a bad typo in the article. “Dead” instead of “deaf” as well as a few errors. In spite of these mistakes, it’s still worth reading.

While growing up, a few kids asked me, “Are you death?”

Obviously, they misheard “deaf” as “death.”

June 8, 2006

Cell Phone Bluetooth Ear Pieces

I like them cell phone bluetooth ear pieces. They make my implant less weird-looking. Is that good grammar? Those things are more noticeable than my implant. Boy, I remember hardly ever wearing my hair up because I didn’t want people staring at my ugly beige hearing aids.

Now I wear my hair up almost all the time. I’ve got thick and curly hair, so it’s like having a fur coat on my neck when I wear it down.

In the ’70s, t-shirts with cool slogans and pictures were a hot item. The local mall had a tee store that put on whatever images and words you wanted. I wore a body hearing aid then making it difficult to see the pictures on the shirt. By the time I got the behind-the-ear hearing aids, the shirts were gone.

And they’ve come back. But I’ve got so many t-shirts now, it’s ridiculous to buy more.

So thank you, cell phone addicts, for making ear pieces cool. :)

June 6, 2006

Captioned Media Program

Resources available in captioned media talks about the Caption Media Program (CMP), a great program that ofers free loans of open captioned programs. The program now offers Internet streaming videos and currently has over 1000 videos. I love this part because finding online captioned media is like the needle in haystack thing.

I just finished reading Winning Results with Google AdWords (reading it to do an abstract, not to advertise) and learned something interesting. Google Video relies on caption transcripts to make its videos searchable. Well, why can’t the captions be in the streaming videos, too?

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May 24, 2006

Deaf in Developing Countries

This story breaks your heart and makes me thankful I’m an American. The treatment of deaf children in developing countries doesn’t surprise me.

May 23, 2006

Online Customer Service

Carter Bloodcare rules. I donate blood on a regular basis, or try to anyway. Carter makes it easy to set up an appointment as it can be done online. The donation appointment form, however, doesn’t play nice with Firefox. No biggie. I’d rather use IE than to navigate a recording to schedule an appointment. You can show up without an appointment, but you may have to wait.

Furthermore, you can check your cholestrol test results and check the date of the next time you can donate blood on the Web site. Now, if the organization would let me fill in my meds and answer the questionnaire online before I go. That’s my least favorite part of the appointment.

Know those postcards you get from non-profit organizations asking you to call if you have clothes and other items to donate? I prefer it when they leave a bag because it means they’ll drive by whether or not you call. I got a surprise the last time I received a postcard. The postcard said you could schedule pick up online.

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May 21, 2006

Audism: A Name for Deaf Prejudice and Wrong Assumptions

Alicia mentioned audism in a recent comment and it was the first I heard of the word. Audism, like racism and sexism, is discrimination against deaf people.

Wikipedia provides examples of audism:

  • Deaf people cannot write well because they are deaf or because English is not their first language.

  • Deaf people cannot be successful without the aid of hearing devices like cochlear implants.

  • Deaf people who can speak well are more successful or smarter than those who can’t or don’t speak.

  • Deaf people cannot perform well in sports due to their loss of hearing, which is related to the sense of balance.

  • Deaf people cannot drive.

I’ve heard some of these, but not the sports reference, which surprised me most considering sports was my thing during my kid years. I only remember of ONE instance where my hearing loss embarrassed me in a sports situation and it happened during basketball practice not a game. We were warming up and I was practicing on the far end of the gym. Coach called us to huddle and I kept on practicing. Blush.

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May 19, 2006

Gallaudet President Extreme Makeover

Ah, it’s good to laugh about the whole thing with this hilarious comic of Gallaudet President Jane K. Fernandes (affectionally known as JKF… OK, so it’s a shortcut not an affection) receiving an Extreme Makeover comic from Dan McClintock’s Cartoon Blogs. More good stuff. Thanks to Alicia Lane for the pointer.

May 17, 2006

University Isn't Accommodating Enough

Yesterday, the kid who wanted to play baseball. Today, the students who want an education. Deaf Students File Lawsuit Against USU. Suddenly, I feel like we’ve jumped back in time.

I graduated college over 10 years ago (yikes!) and even then, American University (AU) had an office for students with disabilities. I spent my freshman year at TCU and got notetakers there. Some good. Some bad. I needed a strong one in economics and got someone who was an economics major, but his notes stunk more than a garbage bin on a hot and humid day.

I just remembered a notetaker that I liked and had for a few classes while at TCU. Tracy. She had the stereotypical girl’s cursive handwriting with big, neat, and round letters. She was thorough and thanks to her, I did well in Ben Proctor’s U.S. history class.

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May 15, 2006

Thinking

Courtney started a fascinating conversation with Being Deaf and thinking. The entry brings up an interview I did with a reporter years ago. How the topic came up, I don’t remember. Somehow, our conversation turned to when I talk or think, I can “hear” words in my head. But I had hearing aids to help me “auralize” words. What would I think if I had never heard a sound in my life? Anyone out there who has been in this situation?

For instance, I’m thinking of the words I type and “hearing” them in my head. Do all hearing people do this? I thought of the word “apple.” I hear it. Sometimes I see it, but more often I hear the word than see the object. Perhaps, this is because so many words don’t have a tangible including tangible as well as is, are, our, quick, and so on.

April 25, 2006

Can't Hear Sirens

I can relate to the Deaf couple who worry because they can’t hear sirens. Every Wednesday at noon, I hear the city sirens (for testing purposes), but I’ve missed a couple. Thankfully, I’ve got a hearing family, but I know there are many deaf couples who don’t have this option and it’s a problem.

The story is about the city sirens, not cars, but it prompted a memory. Way back when I was a new driver in high school, we learned about a GM program that installed siren alerters in cars for free. The hardware alerted me whenever a police, fire, or ambulance had its sirens on so I could pullover or do what’s necessary.

Unfortunately, the thing freaked me out every time it went off and it was wrong 95 percent of the time. We took it out as it was causing more anxiety than helping. One thing about deaf drivers is that we use our eyes and usually notice the flashing lights.

Info on GMAbility and from Edmunds

April 24, 2006

Captioners Are Stars

For the deaf, captioners are the true TV stars — Amen!

It’s amazing that I can catch just about anything on Food Network and TLC in captions. In the past, I’d ignore the ads for a new and interesting program on these channels as they were usually not captioned.

Not anymore.

They get paid a nice sum, so it’s a respectable career.

April 21, 2006

Deaf Want Deaf Babies

When I worked in the federal government, I attended events and meetings of our department’s deaf group. It had about 40 members — an amazing number to me as throughout my life, I never met more than a couple of deaf people at one time. But that’s Washington, D.C. for you. After all, it’s the home of the largest liberal arts university for the deaf and hard-of-hearing — Gallaudet.

The group held a baby shower for three of us who were expecting around the same time — me with my first (seems so long ago). I couldn’t believe it when I heard (read) that one of them had hoped her child would be born deaf. I’m all for being proud of your culture, but to wish this?

I bring this up because the director of the London-based theatre company Deafinitely Theatre felt the same and succeeded. Why wish for something that will make your child’s life harder. It’s very difficult to live in a deaf-only world even with a town in South Dakota, but obviously not everyone can live there especially those in other countries who prefer to stay where they are.

April 19, 2006